Colds and other speed bumps...

I know it has been a long time since last I wrote, but I have been so busy!  Not only am I still thinking about cleaning the big garage for a sale before the Walk MS put on by the National Multiple Sclerosis Society (I have a team called Motivation and we walk the Olympia, WA walk) but I am also thinking about cleaning the little garage so we can get people over here to finish insulating it.

Meanwhile, I have this Long Term Disability (LTD) claim that has been closed, and I am trying to get people to write letters, and I am trying to organize all my SSDI claim information and write a letter to the LTD people to appeal their decision to close my claim.

I also have to do my taxes, which are so different this year due to my change in work status.  And I have a cold.  I keep sneezing!  I don't know if I have ever sneezed this much in a whole year!  Wash the hands.  Wash the hands.  Wash the hands. I have been sneezing into my shoulder, so the shirt needs to be washed again, too.

I know that doesn't sound like much, and it would not be a lot to do for one person with no job, but in my case, there are times that getting out of bed and walking all the way to my recliner is tiring.  I have been going to new doctors and getting new opinions about my situation, and it is really quite interesting.  Each person has a different take on MS and what can be done to help alleviate symptoms, and some of the ideas work for me, at least for a while.  Next on my agenda, coming up in just two weeks, is an appointment with a neuro-opthomologist.  Now that is a mouthful!  Anyway, I am really looking forward to that.  My eyes don't always focus the way they should, and sometimes my left eye feels very "gummy."  It will be interesting to see what is MS related, and what might just be age!

Ok, it is bedtime now, so I guess I ought to get to it.  Feed the cats their bedtime snack, make my tea, shower... so much to do just to get ready for bed!

What's up with all the Paperwork??

Ok, so just yesterday I got a phone call from my long term disability claims rep.  He says my claim has been closed because some people I have never met looked at a report written by a guy who spent three hours with me one day, and they have decided I could, in fact, work at least part time at a sedentary job.  Well, I don't know about you folks, but sitting around on my rear end all day makes my rear end excruciatingly painful, and makes my legs jump like Mexican Jumping Beans.  Also, as you can see by my blog, I can't even do computer "work" like writing a blog every day.  Some days and some weeks are better than others, of course, but MS is not, by definition, a constant!  Especially when one has a worsening form of it.  Even relapsing-remitting (R/R) is defined by more relapsing and less remitting over time.  


So now that I have finished with months of paperwork to show Social Security I can't do months of paperwork, I have to start all over by appealing the long term disability claims-people's decision that I am, in fact, capable of work!  It seems this is very similar to trying to get a loan.  The best way to get a loan is to prove you don't need it, and if you can't show that you have enough money to "cover" the loan, they won't give you the loan!


Ok, so I have been sitting here for a little while now, and my derriere is starting to hurt, so I must get up on my wobbly legs and head for bed before my legs start jogging to China without me.  I hope all is well out there...


Good night.