My Introduction to a
Disease Called Multiple Sclerosis
Once Monday came, I went to see my new
ophthalmologist. She did a bunch of eye things and said I had optic
neuritis, and told me that is a first sign of a disease called Multiple
Sclerosis. She arranged for me to see a neurologist later that day.
(I didn't like the idea of "having something," and getting in
to all these specialists meant that "something" was pretty serious.)
After seeing the neurologist, I was scheduled for a
bunch of tests early the next day, including a Visual Evoked Response (VER)
test. This VER had me looking at a small tv screen with a red and white
checkered background that changed, the black squares became white when the
white squares became black, back and forth. I was supposed to be staring
at the little red dot in the middle. My right eye was boring. My
left eye was fun! The black and white colors zigged and zagged across the
screen, and up and down.
When I saw the neurologist after these tests, he had
already scheduled me for an MRI (magnetic resonance imaging) of my head - at 3
pm that day, and for the first of three steroid (Solumedral drip) treatments -
one hour each day for three days - to hopefully help me regain my sight.
More flags going up that this was serious. And although I am not
great with closed-in spaces, I told them I would be ok with a closed MRI
because it would be like being in a tube, with both ends open, and just my head
inside. I was still a bit worried. I canceled all the plans I had
had that day (including going to watch a football game with a friend who was
counting on me to be there), and began a journey of surprises.
The MRI, which was actually two, one without a shot of
stuff that would show up as "contrast" in my brain, and one without,
was nerve-wracking for someone who had no idea what to expect. It was
full of loud, pulsating whumps that changed now and then. I was further
in the tube than I thought I would be, and my head was encased in this
contraption to keep it totally still. I have always hated for my head to
be held in any way, so I am not sure which was worse: the tube,my head
being held like that, or the shot of "contrast." All
contributed to unsettling my nerves, and all I really wanted after two
whirlwind days, was to go home and curl up, but I knew I still had to go to the
hospital for the Solumedral. (I still didn't know what all that
entailed).
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