Have you ever tried to write about your year while struggling with MS Fatigue? I do every year, and I need help doing it.
It is not just writing that gets me. I can do that in stages, and I tend to have at least one person check my work when I write some letters. (You may also notice that I tend to write much more often in the evening or at night which, for my fatigue, is the best time of the day!)
It is the cognitive aspect. My cognitive abilities have been severely dampened by my fatigue. It interests me that it has been only in the last decade or so that cognitive problems have been linked to MS. I had a cognitive evaluation done last year and it showed I am still an intelligent human being, but with deficits they now link to Multiple Sclerosis. It is probably why I don't submit posts as often as I would like. Too many things in my life to remember: You know, get up, eat, take pills, drink fluids, pay bills, Christmas is coming... (and I really do have to remind myself or be reminded to eat, drink fluids, take pills, pay bills...!)
Anyway, back to this Christmas letter thing. First, I started months ago to address the Christmas cards. Really. And I update the addresses every year on my Excel document, of which I have several copies on several devices, and I date each copy in the name so I know which copy is the latest in the copies I find. Of course, sometimes I even delete old copies, but other times I am so worried that I will lose something important that I end up keeping them.
Next is the letter thing. I was taking notes throughout the year, but I don't know where the notes are, so that didn't work. Instead, this year I asked my housemate, caretaker, landlord, friend... to make a list of all the things that happened this year, and I wrote from her notes and my somewhat Swiss cheese memory. It turned out to be a pretty good letter! And I had only two pages so I only had to use one piece of paper (front and back)!
Well, my back has been very painful today, so I will quit. More later!
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