I was asked the other day at Costco how MS effects people. It seems like such a small question. It is certainly one that can be answered easily if one is talking about a cold, or even some diseases. But Multiple Sclerosis? I told the person asking that she could gather 100 people with MS, and each would have a different story to tell. There are similarities between us, sure, but no two people with MS experience it the same way.
After living with some of the effects of MS for years before the diagnosis, and now living with the diagnosis (dx) for almost a decade, and living on full disability for the past two plus years, asking me about how MS effects even just me is almost mind-blowing! I feel a need to hold a seminar, which was kind of what happened in Costco.
Slowly, people gathered around, listening to what I had to say about MS in general. Many asked questions. It was really nice to be so open about this disease and have so many interested. It is something I would like to do someday. Of course, when the little impromptu "session" was over (I was tired and people wanted to get back to their shopping), one hip had "locked up" on me, and I had to walk it out, pushing my cart, of course!
So, today is a lazy day because I decided I needed a few more days of rest. Yesterday was my nephew's tenth birthday, and I so I had a long day driving into the city, and running a couple of errands before meeting everyone for dinner. I can do that only about three times a month, if I don't want to wear myself out until I am basically bedridden for a week to a month. I didn't get my 12 + hours of sleep in last night, either, because the cats spent an hour this morning trying to convince me it was time to go out. They didn't win. :-)
I did have to make a call to MS Lifelines, though. It seems that since my Rebif is now covered by my insurance, I have to pay more for it than when it wasn't covered by insurance. Does that make sense to anyone??
Lots of thoughts today... Maybe tomorrow will be more focused.
No comments:
Post a Comment